Elliana's Army

Zoey, Jamie, and Ellie Kiesl Ellie's Story: My story began with a surprise. My mom’s pregnancy was mostly healthy, but complications with preeclampsia meant I had to arrive earlier than expected. I was small, fragile, and missing patches of skin on my feet, heels, and hands. My fingers were covered in blisters. My parents immediately asked what was wrong, but they were reassured it was nothing. As new parents, they didn’t know to keep pressing for answers. Ellie Kiesl as a baby with her...

Adalyn Klink Adalyn Klink was born on May 4, 2020, during the height of the COVID-19 pandemic. From her first moments of life, she faced extraordinary challenges. At birth, she had lost 80 percent of the skin on her legs and all the skin on the backs of her hands, requiring immediate and intensive medical care. Doctors rushed Adalyn to the Neonatal Intensive Care Unit, where a neonatologist warned her mother, Julie, that Adalyn likely had the “worst kind” of Epidermolysis Bullosa. Hearing...

Addelyn Farah Born on September 15, 2024, to parents Serenity and Austin, Addelyn Elizabeth Farah was diagnosed with Junctional Epidermolysis Bullosa (JEB) with pyloric atresia. Pyloric atresia is a closure or blockage at the exit of the stomach, preventing food from reaching the small intestine. Although extremely rare, when pyloric atresia is present, it is commonly accompanied by EB. Some of Addelyn’s treatment for pyloric atresia included removing air and mucus buildup from her stomach...