Where it began - Elliana Rose Campbell

Elliana's Army is named after Elliana Rose Campbell, a little girl who took the world by storm when her TikTok account went viral, bringing awareness of Epidermolysis Bullosa (EB) to millions of people worldwide.

Elliana Rose was born May 23, 2024, in Norfolk, Virginia, where her parents - Jacob and Hannah - were stationed with the Navy. From the moment she arrived, she filled the world with light. But it wasn't long before they realized something was wrong.

Shortly after her birth, her parents noticed her fingernails were abnormally long and malformed, and she had blisters on her skin. Elliana was admitted to the CHKD NICU in Norfolk. She spent the first two weeks of her life there, surrounded by monitors, nurses, and love. It took two weeks to receive her diagnosis: Junctional Epidermolysis Bullosa (JEB), a rare and devastating genetic skin condition. Even then, her family didn't yet understand just how severe her case was.

Weeks later, her parents learned the heartbreaking truth - Elliana had the generalized severe subtype of JEB. It meant their time with her would be painfully short.

When Hannah decided to make a TikTok account to share Ellie's story, she had no idea how it would take off. Videos of Elliana's soulful eyes and smiles through the pain quickly captured the heart of millions, gaining her over 750,000 followers. A video of Hannah, Jacob, Elliana, and her big sister Ember at the beach went mega-viral, amassing over 46 million views.

When Ellie's health began to decline drastically, the world paid attention - and Elliana's Army was born. A group of people deeply affected by Ellie's story came together to help organize a memorial walk in her honor, to get a memorial bench dedicated to her in her hometown, sell merchandise to raise funds for a cure, and more.

A memorial bench dedicated to Elliana Campbell sits in the children's garden along the river walk in Brewer, Maine, which is Elliana's hometown. Her big sister Ember, her mother Hannah, and her father Jacob, are pictured on the bench during Elliana's Memorial Walk that took place on May 24, 2025.

Elliana passed away on April 7, 2025 at 10 months old. Her story was shared by news agencies worldwide, including People magazine, E! News, and Today.com. The first annual memorial walk for Ellie took place on May 24, 2025 in Bangor and Brewer Maine along the river walk. The walk began in Bangor, Maine, and went across the bridge to Brewer, where a memorial bench was unveiled for Elliana in the children's garden. The walk raised over $31,000 and had both local and worldwide virtual participants.

Ellie's story continues to move people to action, and in 2025 alone, her story helped raise over $100,000 for EB organizations such as EB Research Partnership and debra of America. Elliana's Army will continue to shine Ellie's light and help other families affected by EB raise funds for a cure.

Elliana Rose Campbell passed away at 10 months old from Junctional Epidermolysis Bullosa (EB), a rare genetic skin disease. Her story went viral and helped to raise over $100,000 in funds for a cure, and was the catalyst for the nonprofit organization Elliana's Army.