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All EB Warrior Stories
Where it began - Elliana Rose Campbell
Elliana's Army is named after Elliana Rose Campbell, a little girl who took the world by storm when her TikTok account went viral, bringing awareness of Epidermolysis Bullosa (EB) to millions of people worldwide. Elliana Rose was born May 23, 2024, in Norfolk, Virginia, where her parents - Jacob and Hannah - were stationed with the Navy. From the moment she arrived, she filled the world with light. But it wasn't long before they realized something was wrong. Shortly after her
The Kiesl Family
Zoey, Jamie, and Ellie Kiesl Ellie's Story: My story began with a surprise. My mom’s pregnancy was mostly healthy, but complications with preeclampsia meant I had to arrive earlier than expected. I was small, fragile, and missing patches of skin on my feet, heels, and hands. My fingers were covered in blisters. My parents immediately asked what was wrong, but they were reassured it was nothing. As new parents, they didn’t know to keep pressing for answers. Ellie Kiesl as a ba
Adalyn Klink
Adalyn Klink Adalyn Klink was born on May 4, 2020, during the height of the COVID-19 pandemic. From her first moments of life, she faced extraordinary challenges. At birth, she had lost 80 percent of the skin on her legs and all the skin on the backs of her hands, requiring immediate and intensive medical care. Doctors rushed Adalyn to the Neonatal Intensive Care Unit, where a neonatologist warned her mother, Julie, that Adalyn likely had the “worst kind” of Epidermolysis Bul
Addelyn Farah
Addelyn Farah Born on September 15, 2024, to parents Serenity and Austin, Addelyn Elizabeth Farah was diagnosed with Junctional Epidermolysis Bullosa (JEB) with pyloric atresia. Pyloric atresia is a closure or blockage at the exit of the stomach, preventing food from reaching the small intestine. Although extremely rare, when pyloric atresia is present, it is commonly accompanied by EB. Some of Addelyn’s treatment for pyloric atresia included removing air and mucus buildup fr
Charlie and Meili - The Knuth Family
Meili and Charlie Knuth Trisha Knuth’s life is a testament to the idea that "family" isn't just about who you are born to - it’s about who you fight for. Alongside her husband, Kevin, Trisha has navigated a journey marked by profound advocacy, medical breakthroughs, and a relentless commitment to children facing the unthinkable. The Knuths’ path changed forever with their biological daughter, Chloe. Now 22, Chloe survived a traumatic shaken baby incident at just three months
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