All EB Warrior Stories

Carol Thurmond gave birth to her son, Joshua, in 1988. He was shortly thereafter diagnosed with Recessive Dystrophic Epidermolysis Bullosa. The doctors assured Carol that EB was so rare, it was highly unlikely she would ever have another child with the same diagnosis.  Her daughter, Sarah, was born and diagnosed with EB one year later.  As a registered nurse, Carol was forced to use her skills to tend to her two children; to make their lives as comfortable and pain-free as EB

This month, we are honored to share the story of Sophia Grace Ramsey: a brave and beautiful baby girl. Sophia was born with Junctional Epidermolysis Bullosa (JEB), which stole her life at only 13 months old. JEB is an autosomal recessive disorder that occurs in less than 5% of EB cases. On April 20, 2019, Sophia Grace Ramsey was welcomed into the world by her loving parents, Katie and Tim Ramsey. It was apparent from her beautiful eyes that she was a very special little girl.

Tova Larsen is a 2-year-old with Junctional Epidermolysis Bullosa. She lives with her family in Saskatchewan, Canada. Two-year-old Tova...

This month, we are honored to share the story of Hallie Grace Davis: a brave and beautiful baby girl. Hallie Grace was unexpectedly born...