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FRIDAY, 07 NOVEMBER 2025

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06:00 - 10:00 PM

SECKFORD HALL
WOODBRIDGE IP13 6NU

FORMAL DRESS CODE

Unable to attend but want to support Darcie on her big night? Help us end EB by donating

For more information about sponsoring, click HERE

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Darcie Game was born 4 December, 2024. Born at home, Darcie's parents, Alice and Ben, immediately knew something wasn't right. Within a few days, Darcie was diagnosed with Junctional Epidermolysis Bullosa (JEB), a rare and debilitating skin disorder that causes blistering and wounds at the slightest friction. JEB affects more than just Darcie's skin - it also affects her airway and digestive tract. Babies with severe JEB rarely live to the age of 2. Darcie is a fighter, and faces every day with a smile.​​

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All proceeds from Darcie's Gala will be donated to Debra UK.

 

Debra UK is a national medical research charity and patient support organisation for anyone in the UK living with EB, their family members, carers, plus healthcare professionals and researchers specialising in EB.

Debra UK has almost 4,000 members, and supports over 600 individuals through their EB Community Support Team each year. The EB Community Support Team aims to improve the quality of life for people living with all types of EB. They provide information, guidance, and advocacy for the wider EB community including families and carers.

In 2024, Debra UK invested over £3.4m in EB research, EB community care and support, and EB specialist healthcare.

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Can't join us in the UK but want to participate? Purchase a Light the Night candle from our store to light on the evening of the gala. You can also purchase a commemorative ornament. All proceeds from Light the Night merchandise sales go to Debra UK.

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